Glasgow & the West
SPAR - Supportive and Palliative Action Register (more information available here) training is about to commence in conjunction with two care homes in East Dunbartonshire, Abbotsford Care Home, Bearsden and Lillyburn Care Home, Milton of Campsie.
SPAR identifies changing palliative care needs in the last months of life in frail elderly people and people with dementia to proactively manage the residents care. It provides a simple framework to improve recognition of deterioration and the possible approaching death of a resident. It also suggests some actions that should be considered when a resident is identified as possibly dying. Contact for this project is Shirley Byron - email@example.com
All Glasgow Hospices’ Prince and Princess of Wales , St. Margaret’s and Marie Curie offer educational support and resources to local services including care homes and care at home services with regard to palliative and end of life care. The Scottish Partnership for Palliative Care are involved in developing this further, looking at ways to improving pathways and access to additional resources. Documents such as ‘What is Palliative Care?’ and ‘Specialist Palliative Care Services in Scotland’ are available on their website.
Inverclyde has a local Hospice, Ardgowan and Stuart Milligan is an Education Facilitator who is based there. Stuart offers bespoke training to care homes in the local area.
The Hospice also has a project called Compassionate Inverclyde this is a multi-disciplinary initiative which aims to raise awareness of palliative care across Inverclyde. Compassionate Inverclyde has a strand which involves developing ‘grief cafes’, where people who require support can meet with others in a similar situation. They aim to ensure that, through a network of volunteers, ‘no one dies alone’ in Inverclyde. People being discharged from hospital in Inverclyde and who have palliative care needs will be supported to get home with a ‘parcel’ of essentials for life and ‘comfort provisions’. This venture is supported by local people and is open to all, including service providers in Inverclyde.
Inverclyde care staff also have access to Eastbank Resource Centre for their training sessions.
NHS Lanarkshire and partners carried out an ‘End of Life project’ in 2016. The purpose of the project was to reduce the paperwork required at this time and also to enable staff to liaise more closely with families, providing them with leaflets to assist with difficult discussions. Staff found this hugely beneficial and as a result the project was rolled out to all care homes and NHS stakeholders in the area. The paperwork is now available in a booklet format. Although originally rolled out through the Care Home Liaison Nurse team in Lanarkshire, the lead person is now Brigid May- Nurse Educator, Palliative Care Clinical Specialist NHS Lanarkshire – telephone number: 07887626894 – please contact Brigid if you require any further information.
In South Ayrshire, providers have the support of the Community Nursing Service including the provision of syringe drivers and input from a Quality Improvement Practitioner (Cancer, Palliative Care & Primary Care) through NHS Ayrshire & Arran.
Scottish Care Local Integration and Improvement Leads for Ayrshire sit on the NHS Ayrshire & Arran District Nurse/Care Home Syringe Driver Support Forum, which is presently looking at issues around care staff training & demand/capacity on syringe driver provision. No care homes in South Ayrshire currently have their own due to challenges around maintenance, but this is an increasing demand on Community Nursing resources.
Staff in Lanarkshire contributed to the first national Palliative and End of Life Care Guidelines that were published in 2014 and are currently involved with updating them. New guidelines are due for publication at the end of 2017.
Training has been delivered in both Anticipatory Care Planning and the new record of End of Life Care. More information regarding the Palliative and End of Life Care Programme can be found on the Healthcare Improvement Scotland website.
West Dunbartonshire has a regular Palliative Care Group Meeting which is presently chaired by senior nurse Val McIver. The meeting is a multi-sector gathering and shares any innovation and/or any concerns about palliative care requirements in West Dunbartonshire.
Lisa King, a Community Staff Nurse whose speciality is palliative care, is also part of the group and she delivers training within care homes as well as SPAR training.
Staff in care homes also have access to training at Eastbank Resource Centre on topics such as Verification of Expected Death and the ‘Sage & Thyme’ model - SAGE & THYME is a mnemonic that acts as an aid memoire for a structured conversation with a person in distress or with concerns. ‘SAGE’ gets the user into the conversation and ‘THYME’ gets them out. St. Margaret’s Hospice offers regular Learning & Development sessions which are free to access.